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Physically cool yourself and the flush down
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Fans are great for cooling the temperature of your skin down. Try to not wrap your body up in layers and more layers of clothing and blankets, even though your body might feel chilly and the fan being on might want you to do so. Keep the layers thin, so your increased body heat (as a result of the facial flaring) can release through all of your body, and not just your face. The fan should be kept at a bit of a distance, ideally. Putting it right in front of your face will not damage your skin right away (although it can dry our your skin in the long run), but it can give your blood vessels an urge to rebound and dilate again once you step away from the fan. Having a steady but milder flow of air is better. Try to keep the room temperature lower than normal but not too low, because making your skin super cold can trigger inflammatory neuropeptides in the flush zone of the skin to build up and to create a big flush once you enter a room with a normal or warm temperature, see for this my post on the Warm Room Flush. Using a fan in a very hot room will act like a hair dryer on your skin, and might make the flare even worse.
Airconditioning
It really depends on each and every person which temperatures are too warm and what temperature is just right, to keep their faces from flaring. Usually, 18 degrees Celcius is still OK but 20 degrees can already be too warm for rosacea. For me personally, I prefer 16 or 17 degrees, all time of the year. In summer, airconditioning can help you stay cool. That speaks for itself. The problem of course is when you create your own private Ice Castle in the home, the chances are you will flush much more and deeper once you go outside and the temperature of the air there is significantly higher. Again: try to keep the room temperature lower than normal but not too low, because making your skin super cold can trigger inflammatory neuropeptides in the flush zone of the skin to build up and to create a big flush once you enter a room with a normal or warm temperature, see for this my post on the Warm Room Flush. It explains what happens to your skin when you go from a cold room into a warm room and why big changes in temperature are not good for your rosacea.
Cold packs
Cold packs are also called gel packs. You can buy them at druggist stores usually, and they are sold to help with sport injuries primarily. When you place the gel packs in the fridge, they will cool to a comfortable temperature. When you put them in the freezer, they will get either very cold and half frozen, or in some cases rock hard and solid frozen (see photo). This is not good for your skin. I bought my own gel packs at different stores and put them all in the same freezer unit. Some will go pale in color and become solid frozen, others remain more soft and flexible. A rule of thumb is to try to not have your gel packs too cold; they can cause frost bite and freezer burn on your skin. These are actual burns, despite originating from the cold instead of the heat. Even though it is the cold that causes them, they will still make your skin get red and hot as a result. There are ways to handle cold packs in order to prevent your skin from injury or damage, mainly wrapping them up in a t-shirt or something (washed in perfume free washing detergent for me). Also don't use them too long due to their rebound skin flaring properties. If you cool your skin for a long time, and make its surface very cold, then your blood vessels can dilate again quite spectacularly once you remove the cold pack and your skin adjusts again to the normal room temperature. Less is more with this thing. I always
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by default, just from the pressure on the blood vessels and the facial swelling. Luckily, after 6 (long!) months, I noticed the nerve pain eased away. But don't you think now that I learned my lesson! :) This silly bint allowed it to happen a couple of times more, ugh.. But luckily never as serious. It gave me big scares though. The past years I have the iron rule for myself, that IF I ever am flushed enough to need a cold pack at night, I will get up. Sit up. In the light. No lying down and bringing a cold pack to bed. My medication makes me sleepy at night and I can be awake one moment and deep deep gone the next, so it's just not safe. You can also put a cold pack on the back of your neck, as Pippa advised me. It cannot damage your face there and it can still blunt some of the vasomotor symptoms of rosacea, and will help bring your temperature down. In result, your blood vessels can constrict more again then, as there is less exaggerated (and abnormal amounts of) heat to be expelled through the skin. A hand held travel fan is another way to stay cool, although this will add some unwanted attention to you, when you're out in public. Travelon has a hand held fan with 3 speeds.
For instance with Avene thermal water spray. I had very little expectations of a can of, basically, spring water. But a rosacea friend in the States said she used it in summer to hydrate and freshen her face, so I reckoned I should try it too. Used it in the past to no avail but I have to say, it's lovely. The lady selling it had a long winding story about its proven anti inflammatory and anti redness actions, how it was all tested, scientifically proven and consists nothing but thermal spring water.
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And try to avoid it, if possible. Some common triggers for a rosacea flair, with hot burning skin, are:
*sun exposure
*hot temperatures
*stress or emotions that make you feel worked up.
*if you have allergies, things like pet dander, pollen or perfumes might provoke a flare.
*intense exercise
*hot baths or drinking hot drinks
*skin care products that contain irritants. This depends on your skin sensitivity, but things to look out for are parabens, perfume/fragrances, essential oils, dyes and strong acids. Also be careful with sodium lauryl sulfate, formaldehyde releasers -they preserve a product against bacteria, mold and fungi- for instance bronopol, diazolidinyl urea, DMDM Hydantoin or quaternium 15. Foaming agent cocamidopropyl betaine is an irritant too, as well as wool related products (lanolin, wool fat or wax and wool alcohol. See this Paula's Choice article for more information on skincare irritants.
*Strong cold winds
*Some people find that sitting long times behind a computer screen flares their rosacea too. The same goes for fluorescent lighting, which can actually increase inflammation in some cases. See this blog post I made on this topic.
Also see your medical specialists to be sure you suffer from rosacea, and not from one of the many other medical conditions that can cause flushing. Also, it is always good to have blood tests done to see if you have vitamin or mineral deficiencies, including low vitamin D levels, which is very common for people with rosacea, or who otherwise avoid the sun. And don't forget to test for high blood pressure, which can really affect facial flushing and burning, and should be brought down to normal values.
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Dry skin is more prone to flushing and redness. Consider using a moisturizing cream or if your skin is too sensitive for this, consider a humidifier in the house. And drink plenty of water. I cannot really use creams on my face, as they all seem to make me more red and irritated, but this is rare and most people with rosacea are perfectly able to find a soothing and irritant free moisturizer. Instead, I try to keep the indoor air humid enough. For some people, high humidity is a rosacea trigger, but for me it is soothing on my skin. Just like physical sweating seems to make my skin more pale. Complete lack of sweating can in fact trigger skin redness and flushing. Therefore I use a cold mist humidifier. You can adjust it to just how high you want the humidity to be in your house, and because it is cold mist, it will not increase the indoor temperature. It is considered 'still standing water' however, so it's important to thoroughly clean the thing every other day. You don't want to spray mold remnants on your face through the air, after all! :) And of course; always drink enough water. Tea and coffee do not count! I find that adding ice cubes to my water helps me to cool down a lot faster. I tend to put a small plastic bottle with water in the freezer. An hour or two before I need to head out (IF I need to head out, preferably not on bad days haha), I will take it out and let it warm up a bit. Then I bring it along and because of the ice pieces in the bottle constantly slowly melting, you will have very cold, fresh water for hours to come!
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and whether or not some of the foods you tend to eat might make you flare up more. I wrote a blog post about food triggers, and it got grossly out of control after I kept adding more and more updates to it, so I will not expect anyone to dig through that whole thing. In summary: food triggers are very individual, but some general rules of thumb are that alcohol, spicy 'hot' foods and foods very high in histamine (think old ripe cheeses for instance) are most likely to flair your rosacea. Otherwise, it's a matter of trial and error, unfortunately. For some people, cutting out foods high in sugar will considerably affect the redness and flaring of their skin. Likewise, grains and/or dairy can negatively impact the skin. You can eat very healthy still by cutting those food groups out, focusing on a high protein (meat and fish, ideally organic, so they contain as little chemical hormones and antibiotic residues as possible) and high vegetable diet. I notice an incredible difference in the severity of my rosacea when I stick to this diet. Problem is; I love sweet stuff! And bad stuff in general, even savory bad foods are a temptation after 5 days of vegetables, fruits and meat. I try to snack on things like dates, coconut, scrambled eggs, olives, melon, the odd rice flour pancake. I make ice sorbets from fruits or rice milk. A day or two of very high carbohydrate intake (delish!) will typically make me more red and flared the next days :/ I try to stick to wholegrain brown rice and sweet potatoes therefore and skip the regular potatoes (YES, crisps count for them too :P ) and all white flour products. This low carbohydrate diet is part of the Paleo Diet, but also of a diet linked to the Auto Immune Protocol.
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*Anti flushing medication:
-clonidine helps constrict the small vessels in your facial skin
-beta blockers like propranolol or atenolol
-Antihistamine medication like Xyzal, Zyrtec or any other brand. Xyzal is relatively new and comes with less side effects (like drowsiness and tiredness) than an old brand like Benadryl.
-certain antidepressants work on the central nervous system and reduce facial flushing. Remeron is one of them, but several others have been mentioned positively on rosacea forums, including Celexa and Zoloft. I wrote here about the medication that helps me with my rosacea symptoms.
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-Antibiotics. Only low dose doxycycline (Oracea / Efracea) will help control inflammation without giving additional risks for antibiotics resistance. It should be the first antibiotic to try, as you can take it long term without the type of side effects that higher dosed antibiotics from the tetracycline family, metronidazole/azythromicine/lymecycline give. Not just resistance problems, increasing the risk of you becoming immune to some antibiotics, but also the risks of bowel conditions and disruption of your natural gut flora. Low dose doxycycline is too low to affect your good gut bacteria, but is strong enough to help your skin fight inflammation.
-Low dose antimalarial medication. Both plaquenil and mepacrine have proven efficient for some cases of rosacea. They need to be taken long term and build up to high enough levels in the blood over a period of at least 5 weeks. They reduce inflammation in the skin. I wrote before about them.
-Some people find relief with low dose roaccutane. This is a vitamine A derivative. It's mainly used for acne and subtype 2 rosacea, with blemishes and papulas, but there have been some success stories for people with only general skin redness and burning and flaring. This drug comes with some more serious potential side effects, although at low dose, the chances of these happening really reduce.
-Other anti-inflammatory medication. Medication from the NSAID group for instance.
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-There are natural herbs and supplements that can help control some of the flaring. It's trial and error, one supplement might work for one person, and cause a flare for another. It's best to take the time to try one thing at a time, so you know exactly if something is working or not. I wrote a blog post about natural anti inflammatories.
-Red Light therapy has helped many people control their facial flushing, burning and redness. I am up for a new trial with it soon and will report once I do.
-Lasers or IPL isn't for everybody, but it has the potential to truly reverse your rosacea and facial flushing. Some people have amazing results, some others are unlucky and see no improvement and some are extremely unlucky and got worse from them If you do the research, find a knowledgeable, experienced and approachable laser specialist, and make sure to do some test patching, you increase your success chances significantly.
-Some people find relief with low dose roaccutane. This is a vitamine A derivative. It's mainly used for acne and subtype 2 rosacea, with blemishes and papulas, but there have been some success stories for people with only general skin redness and burning and flaring. This drug comes with some more serious potential side effects, although at low dose, the chances of these happening really reduce. Taking too high a dose can actually create or worsen existing flushing problems, so the dose is really important here.
-Mirvaso helps some people but has a very bad track record. Far too many people reported severe rebound after using this cream. Sometimes their rosacea simply worsened from it. Very tricky cream, please inform yourself about the reactions that are mentioned on the web. I made an inventory of the good and bad reviews online in the first year or so after it came on the market, but it is just the tip of the iceberg, as I stopped adding new reviews to the (long) page at some point, but I have since been reading only more reviews. It might help you, but I'd just inform myself first about the risks and also be careful to test patch the cream first for a little bit of time.
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A friend of mine passed away due to mixing and matching the wrong medication combination together, and I know of several other people to whom this happened. The more different meds you take together, the more intricate the ways they can interact with each other, and the more at risk you might* be to overload your system. Just be sensible and discuss it with your doctor. Most doctors seem to forget about intermittent check ups (blood work mostly), but always remind your doctor now and then to check blood levels, liver function etc, especially when you take a bag full of medication at the same time (as many of us unfortunately face daily, especially with other underlying illnesses at play).
Protect yourself from the sun, with sunscreen, hats or if need a sunbrella
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Some people get really anxious and demotivated from reading blogs like this one, or from online forums. Just because others might describe a severe case of rosacea, for instance, doesn't mean that you yourself will end up that way. The sooner you can control your symptoms and avoid worsening, the better. But even if you can't; the idea that rosacea always progresses to a terrible end state is found to be untrue, for most patients. Try to see information as more power for you, to fight this skin condition. In general, try to stay active. Don't cut out your friends and family, despite feelings of declining self worth perhaps, or the desire to close yourself off from everything and everybody. In the end, the way forward for most people is to start spending time with loved ones again, letting people in, receiving support and dedicating time and energy again on your work, hobbies, talents. It is very time consuming and stressful to learn to deal with rosacea and to educate yourself as well as you can, and this can feel very overwhelming at times. It is normal to feel depressed at times about the way your skin looks and feels, and about the many lifestyle changes it often demands. But when you feel you are supported and that there are things you can still try, it will most likely improve your mood and your resilience. I wrote earlier about dealing with the isolation that chronic disease brings. I'm not the most optimistic person myself by nature and have periods of depression, but these things have all helped me to get going.
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There are also very good and welcoming forums and online patient groups
The Rosacea Forum
Rosacea Support Community
The Rosacea Research and Development Institute
Rosacea in English facebook group
Make-up for Rosacea facebook group
Rosacea Healing from the Inside Out facebook group
Rosacea Support Community
The Rosacea Research and Development Institute
Rosacea in English facebook group
Make-up for Rosacea facebook group
Rosacea Healing from the Inside Out facebook group
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-Figuring out what my particular triggers were. They can be different for everybody, and it takes a bit of time and frustration usually to figure your own skin triggers out. In my case they are indoor and outdoor heat, sunshine, stress, chemicals in perfumes and other cosmetics. Certain foods and drinks are also a trigger for me, including alcohol, spices, chemical additives (like E-number preservatives). Foods high in histamine trigger my facial burning and redness as well as foods high in sugar. Gluten make my bowel condition worse and in effect gives me more skin inflammation, including papulas (I normally never get them). For me personally, dairy also makes me more red, as do old cheeses. I sit long long hours behind a computer for my work, but I try to have the brightness set to low, or dim the screen even more with a free downloadable dimmer device.
-Trying out different rosacea treatments. Some worked better than others. Some set me back, but others helped me to improve matters. It has been painstakingly slow and demoralizing at times, and I am still looking for improvement, as I haven't cured myself by any means yet. Things have just improved compared to 2005, when all I could do was use coldpacks and fans and suffer. Always severely red and burning, my blood vessels seemed to have gone ballistic.
I tried so far:
-Traditional Chinese Medicine (didn't help me)
-Acupuncture (Unfrt. didn't help me, but has helped many people with a host of different health issues. I am not sure it can help with the more serious and severe medical issues, but it won't harm you either - if done correctly hehe)
-Natural herbal therapy (helps me clear eczema flares but never really seriously helped me with my facial flushing, personally. Nevertheless, there are anti inflammatory supplements like fish oil/omega 3, flax seed, boswellia, and a host of others, which do help beat inflammation on a low level in the body.)
-3 months of oral doxycycline therapy (made my flushing and redness worse and gave me added bowel problems long term, BUT these treatments tend to work very well in fact for many people with rosacea. Trial and error, try try try, with the help and cautious eye of your medical specialist.)
-Diet changes (made a big difference for me).
-All sorts of creams, aimed at treating rosacea, or reducing redness. (The first couple of years my skin handled creams well and they helped me, I think. After about 5 years, my skin suddenly became hypersensitive to any topical and burnt. Dermatologist told me she wanted me to stop all cream experiments and leave the skin alone completely. This helped me to calm things down, and I don't use topicals anymore now, with exception of deluded jojoba oil around my eyes, mouth and forehead.)
-Red Light Therapy. I didn't give this enough time and trials, as I used it in my worst year to date, when I flushed 24/7. I have found my handheld unit back and will try it again these months, to see if by now it works better for me in reducing redness and flushing. Now that I use medication to reduce my symptoms, and now that I no longer flush from every little twitch.
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-Medication. I saw my dermatologist Prof. Tony Chu (Hammersmith Hospital, London) at the end of 2005 and he put me on a combination of 3 anti flushing medications: clonidine (0,075 mcg 3 times a day), propranolol (40 mg 3 times a day) and mirtazapine (between 20 and 30 mg a day, I started with 30 mg for some years but now reduced it to 20, as I find it helps me more at this low dose). I also take an antihistamine called Xyzal (10 mg a day). They all helped me a lot! People sometimes ask me how much it helps me, and it's hard to make percentage estimations, but I couldn't be out without a fan before and flushed literally all day and evening and night, and now I can stay unflushed as long as I stay cooled and go out and not be one hot burning mess instantly. I'd say it improved my flushing by 60% perhaps. Some months it's better than others and this summer was not good, as it was way too hot and for too long a time, but in fall and spring, with mild temperatures, it's all a lot more manageable now. I wrote here about the medication that helps me with my rosacea symptoms.
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They help many other people with rosacea, however. This is just a personal list of what didn't help me.
I tried:
-amitriptyline
-neurontin
-Lyrica
-doxycycline
-minocycline
-azythromicin
-cetirizine
-mepacrine
-plaquenil
-mastocytosis medication; bilastine, pantoprazole and zaditine.
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Thanks for the idea to use water bottles from the freezer - I tried this today and it was helpful :)
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